
Jeanne Faulkner is a freelance writer and registered nurse in Portland, Ore. Her work appears regularly in Pregnancy and Fit Pregnancy, and she has contributed articles to the Oregonian, Better Homes & Gardens, Shape and other publications.
Most of us grew up thinking that doctors had all the answers. My childhood doc prescribed penicillin for anything that ailed us. Got a cold? Penicillin. Sprained ankle? Penicillin. Not pills, either. He liked the big sharp needle in the butt. When I passed out a couple of times after getting these shots, he decided I was allergic to penicillin. I think it was needle-phobia flexing its baby muscles, not an allergy, but I've never tested with an experimental dose to find out. Passing out on the doctor's floor (with or without accompanying anaphylaxis) isn't on my list of must-do life experiences. We now know that penicillin won't do a darn thing for a sprained ankle (unless of course it's gangrenous), but back then antibiotics were the New Big Deal. Doctors prescribed them "just in case" for all kinds of inappropriate illnesses. Turns out they were wrong about that, and now we have supergerms.
I've spent lots of time with doctors over the last decade, and some have been flat wrong in their diagnoses, treatment and opinions. I've been wrong, too, in blindly trusting them and allowing fear to guide my health care. Here's my nasty medical story, the nutshell version. I found a lump, panicked, and took my boob to my primary care doctor, who knew of my sister's recent death from breast cancer. She referred me to Surgeon #1, who decided the lump needed to come out. Scared witless, I let myself be wheeled off to the operating room for a painful and messy procedure without benefit of proper anesthesia or diagnostic imaging. When I freaked out about the pain, Surgeon #1 dosed me with valium, rushed through the rest of the lumpectomy and demanded I calm down. Apparently, I said in the recovery room, "It feels like the lump's still there," an ominous statement considering the bandages prohibited me from feeling anything. Whatever Surgeon #1 dug out of my boob returned with a pathology report of "normal breast tissue."
A year later, after delivering my youngest daughter, I found another lump, this time in my armpit. My primary care doctor referred me to a surgeon again; on my request, a different one.
I asked around about Surgeon #2's reputation before I saw her. If I'd done a little research on Surgeon #1, I'd have heard about botched procedures and disgruntled patients. Surgeon #2, though, was stellar. She ordered a number of tests and studies, which I flunked. Using careful ultrasound imagery and excellent pain management, she needled cells from my armpit and returned a pathology report with some very bad words: metastatic breast cancer from a tumor in my left breast at the same location Surgeon #1 had operated on. In the process of rushing to finish my painful surgery, and without looking where he was going (no ultrasound), Surgeon #1 missed the tumor and left it festering. Fueled by pregnancy hormones, it grew and spread to my lymph nodes. After several surgeries, chemotherapy and radiation, I've been cancer-free for almost 8 years.
I was pissed off at Surgeon #1. He did a lousy job and treated me like a head case. If he'd done the job I'd hired him for, the cancer would have been caught earlier and I'd have avoided chemotherapy. I tried to sue the jerk. An attorney said, "Sure, we could take your case, but since you haven't died yet, you probably won't recoup any losses. Do you really want to spend your time fighting this thing?" No, I didn't. I wasn't sure how much time I had left, and spending it embroiled in legal battles wasn't a Zen thing to do.
I've done my best to forgive the idiot, and learned some valuable lessons. Do your homework first. Don't rush medical decisions. Take time for research and choices. Demand good care and treatment. Find out what the standards of care are and make sure your doctor is following them. Turns out, blindly slashing at potential tumors without benefit of good anesthesia isn't standard of care. Huh. Who knew? I would've--if I'd taken responsibility for my medical care. Surgeon #2 knew. All the oncologists I've met since then knew. Surgeon #1 didn't. Why'd I go with him in the first place? Fear. Just dumb fear. And ignorance.
Since then, I've had doctors prescribe medications with side effects I couldn't handle. When I said, "Let's choose something else. That's not a good med for me," I've been met with varying doctor responses from "Well, it should work and you shouldn't have any problems" to "OK, let's try another approach." Guess which doctor I'll pick now: Not the should/shouldn't one. When told, "get this (bump, pain, mole) checked out immediately because it could be cancer again," I now know there's time enough for homework.
Surgeon #1 probably did the best he knew how to do. He wasn't good
enough for me, but that was my problem, not his. My medical care and
health are my responsibility. I'll never hand the reins over and expect
someone else to drive my medical care for me again. Though I no longer
blindly trust doctors, I've gained control and insight. I'll do the
driving, thank you.
